For most anyone, Tuesday, April 28th, 2015 was a normal day. However, for us, on this day at 11:21am our lives were forever changed, courtesy of a 7lb 14oz hero named Connor Raymond Voigt.
Months before his birth, we learned that Connor had severe hydrocephalus (increased cerebrospinal fluid on the brain). It was a condition that would REQUIRE surgery on the second day of his life, and it would be the first of many unimaginable conversations to come. Soon enough, those conversations would snowball to a crescendo of fear and uncertainty.
Then He Was Born
Then we were made whole and the fear melted away. the fight was just beginning, but we had our hero, our purpose, and An everlasting resolve to fight - no matter the odds, no matter the outcome.
It would prove to be an uphill battle, as Connor would endure multiple surgeries related to the hydrocephalus and other complications. We knew we’d have to fight, but nothing could prepare us for the devastating news we were bound to receive.
At three months old, Connor was diagnosed with a rare and severe form of congenital muscular dystrophy, known as Walker-Warburg Syndrome. A life-limiting disease with no cure, Walker-Warburg opened our eyes to a new reality. A reality we didn’t want to accept.
However, in the days and months following his diagnosis, we had no choice but to live life to its fullest. We adjusted to our new normal, and cherished our time as a family together.
While December 11th, 2015 would mark the day of our temporary separation, Connor would leave us with numerous lessons and a calling to help others.
The fact is, Connor taught us more in his seven months on this earth than most will learn in an entire lifetime. He taught us the true meaning of being grateful, Showed us the power of strength and love, Inspired us to help others in similar situations, And if those weren’t enough, he paved the way for the future of his own family.
It’s in his name that we're dedicated to helping families like ours - little warriors like ours - by standing and fighting beside them - now and forever.
Neil and Whitney Voigt